Links

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Australian Resources


debra Australia Inc
  - The National Dystrophic Epidermolysis Bullosa Research Association of Australia (debra) is a non-profit organisation that investigates and implements ways to help people with EB in their daily lives.  Debra also helps educate the general public and health care professionals about EB and raises funds for vital research into EB. (link to www.debra.org.au

Australian Government Department of Health and Ageing – Promotes better health and active ageing for all Australians. The National EB Dressing Scheme is an initiative of the Australian Government. For information on the scheme go to www.health.gov.au/ebdressings.

BrightSky Australia -  BrightSky Australia is a leading source of everyday and ‘hard-to-find’ specialist healthcare products, such as continence, wound care, nutrition, respiratory and other products needed increasingly for Australians living in the community. BrightSky deliver direct to homes and facilities Australia-wide. (link to www.brightsky.com.au)

Australian Blistering Diseases Foundation - ABDF is a non-profit organisation that fundraises for research into life threatening blistering diseases, supporting patients and their families by providing information and a network of supporters with similar conditions. (link to www.blisters.org.au)

Australian Wound Management Association - AWMA is a multidisciplinary, non-profit association consisting of people who are committed to developing and improving wound management for all individuals through education, research, communication and networks. (link to www.awma.com.au)

St George Hospital Kogarah, Department of Dermatology - for adult patients with EB.  Contact 02 9598 5800 for information about EB Clinics. (link to www.sesiahs.health.nsw.gov.au/sgh/)

University of NSW, St George Clinical School, Faculty of Medicine - research (link to
http://stgcs.med.unsw.edu.au/stgcsweb.nsf/page/resinterestsshowperson?OpenDocument&staffid=9600065 )

Sydney Children’s Hospital Randwick – Provides diagnostic evaluation and a large range of medical services  for children with EB. (link to www.sydneychildrenshospital.com.au

Royal Children’s Hospital Melbourne – Royal Children’s Hospital Melbourne has a Fact Sheet on EB in their ‘Kids Health Information for Parents’ section. (link to www.rch.org.au)

Australasian Wound & Tissue Repair Society – The AWTRS is a non-profit organisation founded in 2007.  It aims to promote knowledge and interchange between scientists, healthcare professionals, industry and other individuals that have an interest in wound healing and tissue repair. (link to www.awtrs.org)

Dietician’s Association of Australia – The National Association of Dieticians in Australia (link to www.daa.asn.au).

Australasian College of Dermatologists -  On this website you will find basic information about various skin diseases and problems. You will also find contact details of individual dermatologists in your state and city.  (link to www.dermcoll.asn.au)


International Resources


Debra International (www.debra-international.org)

DebRA Debra - UK (link to www.debra.org.uk)

DebRA Debra - USA (link to www.debra.org)

Debra - New Zealand (www.debra.org.nz)

For a listing of other international DebRAdDebra websites, go to www.debra.org.au.


Modified on 1/10/2012 2:25:43 PM.