Who is eligible?

Applicants must be clinically diagnosed with EB and be Australian citizens or residents who are eligible to receive Medicare benefits. 

All types of EB are eligible under the scheme.

Skin biopsy and/or genetic testing is required to support your application as follows:
  • For newborns    Tests and results must be submitted within 3 months of approval.
  • For all others    Tests and results must be submitted within 6 months of approval.

To maintain eligibility, approved applicants must attend regular clinical reviews with their Treating Healthcare Professional as set out on the Application Form.

A more in-depth review of the eligibility critiria is provided in the National Epidermolysis Bullosa Eligibility Guidelines.