Patient responsibilities

Applicants and Authorised Representatives have the following responsibilities as outlined in the National Epidermolysis Bullosa Scheme Eligibility Guidelines:
  1. Complete appropriate fields on the Application Form and agree to the terms and conditions of the Scheme.
  2. Request that the Approved Healthcare professional complete and submit the form to BrightSky with all necessary documentation (where applicable).
  3. Once eligible, adhere to all terms and conditions of the Scheme and ensure BrightSky are informed of any changes to personal details or eligibility status such as:
  • Change of name,  
  • Change of address,  
  • Hospitalisation, within 72 hours of admission,
  • Mis-delivery of dressing products within 48 hours,
  • Change to Concessional Card status (with evidence),  
Further, Aprpoved Applicants or Authorised Persons agree to:
  • Payment of monthly co-contributions at the time of ordering.
  • Using dressings as instructed by the Treating Healthcare Professional*.
  • Making appointments and attending a regular review with their Treating Healthcare Professional as indicated**.
  • Having their personal information collected for the purpose of the Scheme.
  • Providing the correct address for delivery where a signatory must be available during business hours.
  • Ensuring BrightSky is accurately informed (at time of order confirmation) each month of
    • the dressings required, or not required, that month that are within the allowable limits***, and, 
    • If an extended hospital stay**** has taken place.
  • Store dressings appropriately, according to manufacturers recommendations.
* Apply dressings as instructed by the treating healthcare professional, or as described at

** Regular reviews with the Treating Healthcare Professional are mandatory. A clinical review must take place at least once every 12 months, or earlier as indicated on the Application Form or subsequently on the NEBDS Review Form.

***The maximum allowable limit for dressings is established by the Treating Healthcare Professional for each individual, based on "Section 3 – Dressings" of the Application Form. Any change to a Standard Order requested by a Treating Healthcare Professional will be actioned on a NEBDS Review Form, and the form will indicate the next review date with the Treating Healthcare Professional.

 **** An extended hospital stay is a stay that is equivalent to, or more than, one (1) month duration. If an extended hospital stay has taken place, a pro rata quota of dressings will apply.